The PROBE study is a multi-national research study which allows people with hemophilia to report their hemophilia severity, treatment history and the impact of hemophilia on their daily life. The research supports efforts to improve treatment access and comprehensive care programs around the world. 

This survey is entirely voluntary and anonymous. The PROBE investigators analyze the data collected, and only fully anonymized aggregated data will be reported. No identifiable information will be collected or disclosed. Patient organizations receive a data set with statistical information from their own country, with comparisons to their region and to the rest of the world.

The MBDS has started to collect data and is therefore improving statistical knowledge on its patient population, which will be used during our advocacy campaigns.

The MBDS encourages all adults with haemophilia to complete this online survey. Individuals who do not suffer from any bleeding disorder are also encouraged to fill in the survey, in order to act as controls.

The survey can be completed by clicking on this link, or by scanning the QR code with a smart device.